The Rare Fair Agenda

Download Agenda in PDF

8:00a - 9:00a Networking

9:00a - 10:00a Keynote

10:00a - 10:30a Swag Box Break

10:30a - 12:00p Breakout Sessions &  Discussion *Select from Tracks 1-4

12:00p - 1:30p  Lunch/Exhibit Hall Open

1:30p - 3:00p Breakout Sessions & Discussion
*Select from Tracks 1-4

3:00p - 3:30p Swag Box Break

3:30p - 5:30p Breakout Sessions & Discussion
*Select from Tracks 1-4

5:30p - 7:00p Dinner/Exhibit Hall Open

7:00p - 8:00p Networking


Breakout Tracks

Breakout Track #1 : Patients

  • Building Your Medical Team: Coordinating Across Specialties
  • Clinical Trials: What You Need to Know
  • Managing Your Diagnosis

Breakout Track #2 : Caregivers

  • Self-Care for the Caregiver
  • Getting Organized: Managing Medical Care
  • Resources: What's Available and How to Find Assistance

Breakout Track #3: Physicians

  • What Your Rare Disease Patient Wants You To Know
  • Networking a Cure
  • Why Zebras Need Special Care

Breakout Track #4: Advocacy

  • Advocacy Primer: Setting Goals
  • Do I Need a Patient Advocate?
  • Legislation versus Resources: What do I need?