The Rare Fair Agenda
8:00a - 9:00a Networking
9:00a - 10:00a Keynote
10:00a - 10:30a Swag Box Break
10:30a - 12:00p Breakout Sessions & Discussion *Select from Tracks 1-4
12:00p - 1:30p Lunch/Exhibit Hall Open
1:30p - 3:00p Breakout Sessions & Discussion
*Select from Tracks 1-4
3:00p - 3:30p Swag Box Break
3:30p - 5:30p Breakout Sessions & Discussion
*Select from Tracks 1-4
5:30p - 7:00p Dinner/Exhibit Hall Open
7:00p - 8:00p Networking
Breakout Tracks
Breakout Track #1 : Patients
- Building Your Medical Team: Coordinating Across Specialties
- Clinical Trials: What You Need to Know
- Managing Your Diagnosis
Breakout Track #2 : Caregivers
- Self-Care for the Caregiver
- Getting Organized: Managing Medical Care
- Resources: What's Available and How to Find Assistance
Breakout Track #3: Physicians
- What Your Rare Disease Patient Wants You To Know
- Networking a Cure
- Why Zebras Need Special Care
Breakout Track #4: Advocacy
- Advocacy Primer: Setting Goals
- Do I Need a Patient Advocate?
- Legislation versus Resources: What do I need?