Join us for kid-friendly sessions hosted by other kids, special sessions for parents, engaging games, and fun prizes!
Every session is moderated by an adult and kid sessions are restricted to pediatric patients only.
Check out our agenda.
Kaitlyn, 15 years old
Likes/Interests/Hobbies: Dance, Anime, Shopping, Friends, Art and Make up
I am the daughter of a rare disease mom who has Moyamoya Disease.
What it’s like to be a zebra supporter: I love that I can help others who are having a hard time in life.
Social Accounts I Love: @MoyamoyaFoundation @Sisters at Heart
Cambria (13) is this year's co-chair and the creator of "ZTV", a YouTube Channel dedicated to highlighting the pediatric rare disease community. She is the founder of the "My Life As a Zebra" blog and creator of "Rare with Fred", an awareness program aimed at highlighting rare disease patient stories and organizations working in the space.
A rare disease daughter, sibling, and friend, Landrey (15) is no stranger to offering support for rare disease patients.
With years of peer-mentoring and leadership experience, Landrey is poised to launch the Junior Edition as co-chair in 2022.
"I know that living with a rare disease diagnosis can be really tough. If I can help kids see past their diagnosis and validate who they are as individuals, that's my goal."
Meet Anna soon!
Meet Sarah soon!
Meet Rae soon!
Meet Eddison soon!