Eden Lord is the CEO and Co-Founder of My City Med an online resource that helps to connect rare disease patients with critically needed resources. She is the creator of the 100% virtual online event The Rare Fair with the main purpose of giving everyone, worldwide, in the Rare Community a voice at the table. Coming in late 2019 and early 2020, Eden has been developing the 100% virtual Genetics Summit and 100% virtual MedTechExpo. In addition to these virtual events look for the 24 Hours of Rare, a 100% virtual event that will follow the Sun around the globe..
Eden has been a patient advocate for over 15 years. First fighting for a diagnosis for her father and then becoming a champion for her daughter Cambria who was born in 2009 with a Rare Chronic Disorder. Eden has championed the rare fight in the States of Kansas and Missouri, has taken the battle to our nations Capital where she has lobbied for the rare disease community. She has been published on the Mighty and Today Show. As an advocate Eden has battled with local EMS to put in place protocols and life saving procedures that would otherwise have gone unchecked. She has presented at 1 Million cups on several occasions sharing ideas that would greatly improve the medical awareness of first responders about rare disease patients.She has been a state ambassador for NORD and a lobbyist for RDLA.
Eden heads the non-profit organization The Cambria Lord Foundation that helps families with the same rare disorder has her daughter. She holds a Masters from Baker University and has published a medical tracking tool The MediPlanner. She is married and has 4 incredible children ranging from ages 13 to 1.