As a rare disease patient and stroke survivor, Stephanie Fischer is passionate about explaining health policy and drug development so that patients and their families can understand why it matters and feel empowered to engage legislators and regulators. She serves on the Executive Committee of the Rare Advocacy Movement and on the Advisory Board of the Rare and Undiagnosed Network.
Stephanie currently consults on patient engagement for Ovid Therapeutics. She consulted for Global Genes for a year and was responsible for increasing community engagement on social media with relevant and timely content. She previously served as Chief Patient Engagement and Communications Officer at the EveryLife Foundation for Rare Diseases, a nonprofit dedicated to accelerating innovation for rare disease treatments through science-driven public policy.
Prior to joining the Foundation, Stephanie spent more than 10 years focused on health policy communication at the Biotechnology Innovation Organization (BIO) and Pharmaceutical Research and Manufacturers of America (PhRMA). She worked for U.S. Representative Jim Greenwood (PA-8) for nine years until his retirement in 2004.
Stephanie has a Bachelor of Arts in Government from Cornell University.