[eventum_counter position=”center” title=”THE RARE FAIR 2019″ date=”2019-09-27 07:00:00″ title_fontsize=”62″ title_fontweight=”900″ title_text_color=”#ffffff” subtitle=”27 SEPTEMBER 2019, WORLDWIDE” subtitle_fontsize=”24″ sub_text_color=”#ffffff” subtitle_fontweight=”700″]
[themeum_title position=”left” title=”The Rare Fair 2019″ size=”36″ title_weight=”700″ color=”#ed145b” title_margin=”0″ title_padding=”0″ subtitle=”Invaluable Patient Resources from Across the Glob” subtitle_size=”24″ subtitle_weight=”600″ subtitle_color=”#ffffff” class=”rtl-right” style=”style1″]
[themeum_title position=”left” title_padding=”0″ subtitle=”The Rare Fair is your chance to network with rare resources, organizations, patients, and other stakeholders from across the globe.” subtitle_size=”16″ subtitle_weight=”300″ subtitle_color=”#ffffff” style=”style1″]
[themeum_button display=”inline-block” btn_link=”https://www.eventbrite.com/e/the-2nd-annual-rare-fair-2019-powered-by-my-city-med-tickets-57155085399″ btn_name=”Buy Ticket” target=”_blank” btn_text_size=”16″ btn_color=”#ffffff” btn_color_hover=”#ffffff” btn_background=”#ed145b” btn_background_hover=”#db1147″ border_radius=”4″ btn_weight=”500″ btn_margin=”0 20px 20px 0″ btn_padding=”15px 30px” class=”rtl-right” button_url=”#” button_text=”Buy Now” size=”16″ title_weight=”300″ rounded=”4″ color=”#ffffff” bgcolor=”#92278f” title_padding=”8px 10px”][themeum_button display=”inline-block” btn_link=”https://therarefair.com/retrophin-sponsors-patient-education-room/” btn_name=”Learn More” target=”_blank” btn_text_size=”16″ btn_color=”#ffffff” btn_color_hover=”#ffffff” btn_background=”#8ac329″ btn_background_hover=”#6fad24″ border_radius=”4″ btn_weight=”500″ btn_margin=”0 0 20px 0″ btn_padding=”15px 30px” button_url=”#” button_text=”Buy Now” size=”16″ title_weight=”300″ rounded=”4″ color=”#ffffff” bgcolor=”#92278f” title_padding=”8px 10px”]
[themeum_title title=”Event Schedules” size=”36″ title_weight=”900″ color=”#ffffff” title_margin=”0 0 60px 0″]
27Sep 2019

Welcome Remarks

Speaker:
07:00 AMAuditorium

Networking/Exhibit Hall Open

07:15 AMExhibit Hall

Breakout Session 1 & Discussion

08:00 AMAuditorium

Breakout Session 2 & Discussion

09:00 AMAuditorium

Keynote & Discussion

10:00 AMAuditorium

Breakout Session 3 & Discussion

11:00 AMAuditorium

Lunch/Exhibit Hall Open

12:00 PMExhibit Hall

Breakout Session 4 & Discussion

01:30 PMAuditorium

Break/Exhibit Hall Open

03:00 PMExhibit Hall

Breakout Session 5 & Discussion

03:30 PMAuditorium

Dinner/Exhibit Hall Open

05:30 PMExhibit Hall

Concluding Remarks & Next Steps

Speaker:
06:30 PMAuditorium
Research & Resources

Patient Registries - Does your Population Need One?

Speaker:
09:00 AM - 9:30 AMAuditorium

New Genetics Course for People Affected by Rare Disease

Speaker: ,
11:00 AM - 11:30 AMAuditorium

Natural History Studies - The Process Outlined

Speaker:
1:30 PM - 2:00 PMAuditorium
27Medical Professionals & Researchers

Nursing in the Rare Disease Environment

Speaker: ,
9:30 AM - 10:00 PMAuditorium

From the Lab to the Patient

Speaker:
2:00 PM - 2:30 PMAuditorium

Child Life: Strength Among the Unknown

Speaker:
11:00 AM - 11:30 AMAuditorium

A Community Pharmacist's Role in the Management of Rare Diseases"

Speaker:
2:30 PM ETAuditorium
[themeum_title title=”Who’s Speaking?” size=”36″ title_weight=”700″ color=”#ffffff” title_margin=”0 0 40px 0″]
Pat Guerre

Pat Guerre

Kneading Hope

Jenna Swan

Orchard Therapeutics

Cambria Lord

www.mylifeasazebra.com

[themeum_title title=”Buy Tickets” size=”36″ title_weight=”700″ color=”#ffffff” title_margin=”0 0 50px 0″]
[themeum_pricing_table title=”Patient/Advocate” price=”$29″ duration=”/day” pricing_content=”Entrance
Coffee Break
Certificate
Workshop” button_url=”http://themeforest.net/user/themeum/portfolio” button_text=”Buy Ticket” btn_color=”#000000″ btn_bg=”#ffffff” color=”#ffffff” titlecolor=”#ffffff”]
[themeum_pricing_table title=”Business” price=”$89″ duration=”/day” pricing_content=”Entrance
Coffee Break
Certificate
Workshop” button_url=”https://www.eventbrite.com/e/the-2nd-annual-rare-fair-2019-powered-by-my-city-med-tickets-57155085399″ button_text=”Buy Ticket” btn_color=”#000000″ btn_bg=”#ffffff” color=”#ffffff” background=”#f26522″ background_transparency=”.8″ featured=”featured”]
[themeum_pricing_table title=”Premium” price=”$189″ duration=”/day” pricing_content=”Entrance
Coffee Break
Certificate
Workshop” button_url=”http://themeforest.net/user/themeum/portfolio” button_text=”Buy Ticket” btn_color=”#000000″ btn_bg=”#ffffff” color=”#ffffff” titlecolor=”#ffffff”]
[themeum_title title=”Join The Rare Fair 2019″ size=”36″ title_weight=”700″ color=”#ffffff” title_margin=”0″ title_padding=”0″ subtitle_size=”24″ subtitle_weight=”600″ subtitle_color=”#0a0a0a” class=”rtl-right” style=”style1″]
[themeum_call_to_action position=”center” padding=”” title_size=”” title_weight=”400″ title_color=”” title_margin=”” subtitle=”The Rare Fair is the only 100% virtual, 100% global event for the rare disease community.
Join us on 9.27.19 from 7A-7P ET. We saved you a seat.
#WelcomeToTheTable” subtitle_color=”#ffffff” btn_text=”” btn_margin=””]
[themeum_button position=”center” display=”block” btn_link=”https://www.eventbrite.com/e/the-2nd-annual-rare-fair-2019-powered-by-my-city-med-tickets-57155085399″ btn_name=”Buy Ticket” target=”_blank” btn_text_size=”16″ btn_color=”#ffffff” btn_color_hover=”#ffffff” btn_background=”#ed145b” btn_background_hover=”#db1147″ border_radius=”4″ btn_weight=”500″ btn_margin=”0 20px 20px 0″ btn_padding=”15px 30px” class=”rtl-right” button_url=”#” button_text=”Buy Now” size=”16″ title_weight=”300″ rounded=”4″ color=”#ffffff” bgcolor=”#92278f” title_padding=”8px 10px”]
[themeum_title title=”Our Event Sponsors” size=”36″ title_weight=”700″ color=”#ffffff” title_margin=”0 0 10px 0″ subtitle=”Interested in becoming a sponsor?” subtitle_size=”16″ subtitle_weight=”300″ subtitle_color=”#f2f2f2″ href=”“#“”]
[themeum_title title=”Sign Up For Our Newsletter” size=”24″ title_weight=”700″ color=”#ffffff” title_margin=”0 0 30px 0″ subtitle_color=”#333333″]