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THE RARE FAIR 2019

27 SEPTEMBER 2019, WORLDWIDE

The Rare Fair 2019

Invaluable Patient Resources from Across the Glob

The Rare Fair is your chance to network with rare resources, organizations, patients, and other stakeholders from across the globe.

Event Schedules

27Sep 2019

Welcome Remarks

Speaker: EDEN LORD, MSM
07:00 AMAuditorium

Networking/Exhibit Hall Open

07:15 AMExhibit Hall

Breakout Session 1 & Discussion

08:00 AMAuditorium

Breakout Session 2 & Discussion

09:00 AMAuditorium

Keynote & Discussion

10:00 AMAuditorium

Breakout Session 3 & Discussion

11:00 AMAuditorium

Lunch/Exhibit Hall Open

12:00 PMExhibit Hall

Breakout Session 4 & Discussion

01:30 PMAuditorium

Break/Exhibit Hall Open

03:00 PMExhibit Hall

Breakout Session 5 & Discussion

03:30 PMAuditorium

Dinner/Exhibit Hall Open

05:30 PMExhibit Hall

Concluding Remarks & Next Steps

Speaker: EDEN LORD, MSM
06:30 PMAuditorium
Government Agencies & Research

GARD as a Patient Resource

08:00 AM - 8:30 AMAuditorium

Patient Registries - Does your Population Need One?

09:00 AM - 9:30 AMAuditorium

Genetic Mapping - What More is there to Learn in Rare?

11:00 AM - 11:30 AMAuditorium

Natural History Studies - The Process Outlined

1:30 PM - 2:00 PMAuditorium

Establishing Centers of Excellence

3:30 PM - 4:00 PMAuditorium
27Medical Professionals & Researchers

Physician Collaboration in Rare

10:00 AM - 11:00 AMAuditorium

Nursing and Rare

11:00 AM - 12:00 PMAuditorium

Collaboration to Reduce Errors

1:00 PM - 2:00 PMAuditorium

From the Lab to the Patient

3:00 PM - 4:00 PMAuditorium

Who's Speaking?

BARBARA L. HANDELIN, PhD

Founder, CEO Audacity Therapeutics, PBC

STACEY FEUER, PSYD, MLD

STACEY FEUER, PSYD, MLD

Patient Advocate, Speaker & Health Psychologist

STEPHANIE FISCHER

STEPHANIE FISCHER

Rare Disease Patient & Advocate

EDEN LORD, MSM

EDEN LORD, MSM

Founder & CEO, My City Med

NEENA NIZAR, Ed.D.

NEENA NIZAR, Ed.D.

Founder & Executive Director, The Jansen's Foundation

CARRIE OSTREA

CARRIE OSTREA

Executive Director and Co-Founder, Little Miss Hannah Foundation

LAURA QUINN

LAURA QUINN

Managing Director, ASSAI Health Solutions

Buy Tickets

$29/day
Patient/Advocate
  • Entrance
  • Coffee Break
  • Certificate
  • Workshop
$189/day
Premium
  • Entrance
  • Coffee Break
  • Certificate
  • Workshop

Join The Rare Fair 2019

The Rare Fair is the only 100% virtual, 100% global event for the rare disease community.
Join us on 9.27.19 from 7A-7P ET. We saved you a seat.
#WelcomeToTheTable

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