#RareUnited
Join us for The Rare Fair,
the original virtual event for the global rare disease community.
January 12-15 | 2022
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About The 4th Annual Rare Fair
The only 100% virtual, 100% inclusive event for the global rare disease community.
The Rare Fair is a four-day global event designed to connect rare patients, caregivers, and advocates with the resources they need to manage a rare disease diagnosis.
At The Rare Fair, patients and caregivers can network directly with physicians, medical providers, non-profit organizations, and other rare stakeholders. Our goal is to bring together the best rare resources available so attendees can add those resources to their own diagnosis management network.
Event Overview
Days One & Two: #RareUnited
The Rare Fair is a four-day global event designed to connect rare patients, caregivers, and advocates with the resources they need to manage a rare disease diagnosis.
On Day One & Day Two, we'll feature interactive talks from stakeholders in the rare disease space, networking opportunities, and educational sessions, much like a traditional conference.
Each day will focus on two stakeholder groups (one in the morning, one in the afternoon) to maximize attendees' time. If an attendee misses a session, they can catch up on-demand for a week after the event.
Day Three: Rare Insights
On Day Three, we'll preview the Rare72 cycle and address the featured challenges for our inaugural Rare72 cycle, running January 17 - February 18.
Rare72 is a rare disease model designed to source solutions to common challenges in the global rare disease community.
Attendees will hear from experts in each of the challenge areas and discuss how we can collaborate globally to find solutions.
Rare72 will address key issues facing the global rare disease community including:
Expanded access to Newborn Screening | Genetic Testing
Building Patient Support Programs & Supporting Patient Engagement
Barriers to Early Access | Decentralized Clinical Trials
Expedited Diagnosis & Misdiagnosis Prevention
Shortening the Path to Diagnosis | Diversity and Inclusion
Incentivizing Data Sharing | Cultural Barriers
Diagnostic Challenges in Neuro-Ophthalmolog
*Wildcard topics as presented by participating rare disease stakeholders
Patients, advocates, researchers, physicians, and other rare stakeholders are welcome to join a team or participate individually.
Visit our site to register and learn more.
Day Four: The Rare Fair - Junior Edition
This one's for the kids!
On January 15th, we'll be hosting a day of kid-exclusive content with a concurrent parents' track. Join us with your rare little one to enjoy fun games, opportunities to connect with other kids, and workshops - all professionally moderated for your child's safety and your peace of mind.
Presented By
Sponsors
Our Exhibitors
