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THE RARE FAIR 2019

9.27.2019 WORLDWIDE

WHAT IS THE RARE FAIR 2019

#WelcomeToTheTable

The Rare Fair is the only 100% virtual, 100% inclusive event for the rare disease community. When you join us at The Rare Fair, you can log on from anywhere in the world to enjoy unprecendeted access to this global event.

Our virtual event operates exactly like a traditional health fair with keynote speakers in a dedicated theater, breakout rooms, an exhibitor hall, networking rooms, gamification, and patient education resources.

At The Rare Fair, patients and caregivers can network directly with physicians, medical providers, non-profit organizations, and other rare stakeholders. Our goal is to bring together the best rare resources available so attendees can add those resources to their own diagnosis management network.

This year’s theme is #WelcomeToTheTable, illustrating our belief that every rare patient, caregiver, and advocate deserves a seat at the table and a voice in the conversation. Join us for The Rare Fair on September 27, 2019. We saved you a seat.

Who's Speaking?

SIVASANGARAN KUMARAN

SIVASANGARAN KUMARAN

Rare Disease Advocate (Father of Swathi – Infantile Pompe Warrior)

BECKY M. ABBOTT, MPH

BECKY M. ABBOTT, MPH

National Foundation for Ectodermal Dysplasias

ALISON BATEMAN-HOUSE, PhD, MPH, MA

ALISON BATEMAN-HOUSE, PhD, MPH, MA

NYU Langone Health Department of Population Health

TARA BRITT

TARA BRITT

Associate Chair, NC Rare Disease Advisory Council Founder, NC Rare Disease Innovations Institute

STACEY FEUER, PSYD, MLD

STACEY FEUER, PSYD, MLD

Patient Advocate, Speaker & Health Psychologist

STEPHANIE FISCHER

STEPHANIE FISCHER

Rare Disease Patient & Advocate

DR. FEMIDA GWADRY-SRIDHAR

DR. FEMIDA GWADRY-SRIDHAR

Founder and CEO

PULSE infoframe

BARBARA L. HANDELIN, PhD

BARBARA L. HANDELIN, PhD

Founder, CEO Audacity Therapeutics, PBC

DAWN TORRENCE IRELAND

DAWN TORRENCE IRELAND

President of CDHi

STACEY KOENIG, MSM, CCLS

STACEY KOENIG, MSM, CCLS

Senior Director, Patient and Family Support Services

Children's Mercy Hospital

ANNA LAURENT

ANNA LAURENT

Young Adult Representatives of RDLA

Event Schedule

Friday, 27 September 2019

27Sep 2019
#SessionSpeaker(s)/ModeratorTimeVenues
1Welcome RemarksEDEN LORD, MSM 07:00 AMAuditorium
2Networking/Exhibit Hall Open07:15 AMExhibit Hall
3Breakout Session 1 & Discussion08:00 AMAuditorium
4Breakout Session 2 & Discussion09:00 AMAuditorium
5Keynote & Discussion10:00 AMAuditorium
6Breakout Session 3 & Discussion11:00 AMAuditorium
7Lunch/Exhibit Hall Open12:00 PMExhibit Hall
8Breakout Session 4 & Discussion01:30 PMAuditorium
9Break/Exhibit Hall Open03:00 PMExhibit Hall
10Breakout Session 5 & Discussion03:30 PMAuditorium
11Dinner/Exhibit Hall Open05:30 PMExhibit Hall
12Concluding Remarks & Next StepsEDEN LORD, MSM 06:30 PMAuditorium

Our Event Sponsors

Powered By

Silver Sponsors

Exhibitors

Media Partners

$24/event day + 30 days of on-demand access
Patient/Caregiver
  • Exhibit Hall
  • All Breakout Sessions
  • Live Chats in Community Booths
  • Attendee Networking
$69/event day + 30 days of on-demand access
Non-Profit Rep
  • Exhibit Hall
  • All Breakout Sessions
  • Live Chats in Community Booths
  • Non-Profit Networking Event

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