Becky Abbott | NFED Advocacy Committee Co-chair National Foundation for Ectodermal Dysplasias

Alison Bateman-House, PhD, MPH, MA

Helena Baker | Rare Disease Nurse Network

José Bastos | Co-Founder & CEO | Knok Health

Lisa Bayha Deck, Rare New England

Bo Bigelow, The Disorder Channel

Allison D’Ambrosio Bones, T.E.A.M. 4 Travis

Tara Britt, Rare Disease Innovations Institute

Anne Bruns, Parent, Advocate

Marni Cartelli, Patient and Advocate

Jim Cavan, MS

Johnathan Dicks, Emergency RN

Nicholas Dryer, PharmD | Community Pharmacist

Sika Dunyoh | Associate Director, Patient Advocacy | Retrophin

Dr. Julie Eggington | Co-Founder & CEO | Center for Genomic Interpretation

Nahzi Forrest | Sickle Cell Advocate | Nahzi Thee Baker

Stephanie Fischer, Advocate

Stacey Feuer, PsyD, MLD | Patient Advocate, Speaker & Health Psychologist

Sean Gordon, Patient & Advocate

Bo Govea, Advocate and Parent

Megan Garlapow | Center for Genomic Interpretation

Dr. Femida Gwadry-Sridhar | CEO | Pulse Infoframe

Dr. Barbara Handelin | Founder & CEO, Audacity Therapeutics

Georgia Hart | Rare Revolution Youth Ambassador

Arme Hendriksz, FYMCA Medical Ltd.

Carole Herman | Rare Disease Parent Advocate

Corey Iqbal, MD, FAAP, FACS

Dawn Ireland, CDHI

Sumathi Iyendar, MD, Wiskott-Aldrich Foundation

Ilana Jacqueline, Author & Advocate

Gavin Jones | Director of Rare Disease | OPEN Health

Taylor Kane, Remember the Girls

Janet Kennedy, Spencer Health Solutions

Stacey Koenig, MSM, CCLS | Senior Director, Patient & Family Support Services, Children’s Mercy Hospital

Sivasangaran Kumaran, Rare Disease Advocate/Father of Swathi (Infantile Pompe) | Rare Disease Malaysi

Jenna Kucharski, Associate Director, Orchard Therapeutics

Anna Laurent | Everylife Foundation, YARR member

Cambria Lord, Youth Advocate

Eden Lord, The Dash Alliance

Jeff Lord, The Dash Alliance

Jennifer Marchesano, Nurse, Parent & Advocate

Craig Martin, Global Genes

Olivia Montano | PROS Foundation

Kevin Mott | Member, Board of Directors | NephCure International

Eddison Miller, Youth Advocate

Nicola Miller Gelati | Editor-In-Chief | Rare Revolution Magazine

Tracey Murray, RGN, DipEd Nursing | Rare Disease Nurse Network Trustee

Sharon Rose Nissley | Founder & Executive Director, Klippel-Feil Syndrome Freedom

Joyce Nortey, MPH, MSBH | Founder & Lead Advocate | Norkai Advocates

Neena Nizar, EdD | Founder & Executive Director, The Jansen’s Foundation

Cecile Ollivier | Chief Innovation and Regulatory Science Officer | Aparito

Carrie Ostrea | Executive Director and Co-Founder, Little Miss Hannah Foundation

Adrian Palau-Tejeda | Diversity & Inclusion Fellow | The Everylife Foundation

Effie Parks | Host | Once Upon a Gene Podcast

Allison Peck, Rare Disease Spouse, VCP

Jane Pedersen, PT, Duke University Hospital

Meghan Perry, Orchard Therapeutics

Laura Quinn | Managing Director, ASSAI Health Solutions

Luke Rosen,

Scott Schliebner, MPH

Steve Silvestri | Policy Director, The Everylife Foundation

Dylan Simon, EveryLife Foundation

Claire Bidwell Smith, Grief Therapist

Holly Snyder | Board-Certified Genetic Counselor, Illumina

Dr. Lorna Speid, Ph.D., M.R. Pharm. S. | President of the Board of Directors, Putting Rare Disease Patients First!

Rebecca Stewart | CEO, Rare Revolution Magazine and Co-Founder & Trustee of Teddington Trust

Dr. Constantine Stratakis, NIH

Shira Strongin, Advocate

Meg Talley Dyer | Rare Disease Advocate & Parent

Tinn Tinn, Rare Disease Advocate and Performer, Zimbabwe

Trisha Torrey, Author

Angela Urbano | Founder & Executive Director | Blount’s Disease Strong

Siri Vaeth, CFRI

Monica Weldon, Advocate & CEO

Patricia Weltin | Activist & Citizen Scientist | Beyond the Diagnosis

Samuel Agyei Wiafe, MD, Clinical Psychologist

Kirsten Wilson, The Bulldog Educator Podcast

Congressman Kevin Yoder, Kansas