Three years ago, My City Med began offering virtual events to accommodate patients who were unable to travel to conferences due to medical or financial barriers. We believe in providing equitable access to resources for all patients and caregivers and that access Read More
Meet Steve, healthcare policy guru, Policy Director at the EveryLife Foundation for Rare Diseases, and Newborn Screening Advocate. How long have you worked in the Rare Community? I’ve spent 1 year focused solely on rare and 6 years in healthcare policy in Read More
There’s been a rare disease renaissance of late and like many I know, I couldn’t be more thrilled. I know from experience that rare is a beast. Almost six years ago, a rare diagnosis took my father and has threatened to take Read More
We say “why not?” While there are several amazing conferences and fairs held annually by non-profits nationwide, we understand how challenging it can be for rare patients to travel in order to make new rare connections. Our format mimics traditional physical conferences, Read More
